May Institute’s Dr. Ivy Chong Leads Global Effort to Enhance Care for Autism


Randolph, Mass. – Ivy Chong, Ph.D., BCBA-D, M.B.A., May Institute’s Senior Vice President of Children’s Services, and an internationally recognized expert in autism spectrum disorder (ASD), served as a key player in the recent rollout of a global Set of Patient-Centered Outcome Measures for ASD treatments organized by the International Consortium for Health Outcomes Measurement (ICHOM).

ICHOM’s mission is to unlock the potential of value-based healthcare by defining global standard sets of outcome measures that matter most to patients and driving adoption and reporting of these measures worldwide to create better value for all stakeholders.

As chairperson of the ICHOM project team that developed the ASD Set, Dr. Chong was one of the featured presenters during the worldwide webinar for its launch. In addition to renowned international clinical leaders in the field of autism including researchers, psychologists, and behavior analysts, ICHOM also recruited patient representatives to serve on the project team.

The team worked together for two years to identify standards that will positively impact the quality of life for individuals with autism while driving value-based healthcare globally.

“The ultimate goal of the ASD Set is to present a world where patients can ask providers about meaningful outcomes and clinicians can respond with data-driven answers,” said Dr. Chong. 

The ASD Set recommends measuring the following nine health outcomes covering four domains:

  • Restricted and repetitive behaviors
  • Social communication
  • Daily functioning
  • Leisure
  • Quality of life
  • Family functioning
  • Emotional regulation
  • Anxiety
  • Sleep issues

“The ASD Set allows patients to evaluate treatment options before making a choice. Feasibility is an important consideration for families as are the financial aspects of treatments,” said Dr. Chong. “It is important to understand that the cost of providing a lifetime of care to one individual with ASD can total as much as $4 million. That cost can be cut in half and the prognosis improved if the person begins receiving data-driven treatments at an early age.”

About May Institute
May Institute is a nonprofit organization that is a national leader in the field of applied behavior analysis, serving individuals with autism spectrum disorder and other developmental disabilities, brain injury and neurobehavioral disorders, and other special needs. Founded more than 65 years ago, we provide a wide range of exceptional educational and rehabilitative services across the lifespan. For more information, call 800.778.7601 or visit

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