Randolph, Mass. – People can be cruel even when they don’t mean to be. A disapproving look, careless reference, or impatient gesture directed at an individual with an autism spectrum disorder (ASD) or a member of their family can be as painful emotionally as any physical injury sustained. Yet, despite the explosion of information on the Internet about autism, the disorder is still often misunderstood by many outside the autism community. New and sobering statistics from the Centers for Disease Control and Prevention (CDC) indicate that one in every 88 children in the U.S. has an autism diagnosis.
Autism is a developmental disability that typically appears during the first three years of life. It is a neurological disorder causing difficulty with communication, learning, and social interaction. There is no known cause of autism and there is no cure.
To help inform the public during National Autism Awareness Month in April, parents of children with autism enrolled at May Institute’s special education schools were asked to identify hurtful or insensitive remarks that have been directed at them and their families. They also shared suggestions for how the community can be more supportive.
“Autism is a very complex disorder. These comments typically come from having a limited understanding of what autism is and what it isn’t,” says Hanna C. Rue, Ph.D., BCBA-D, Vice President of Autism Services at May Institute and Director of Evidence-based Practice at the National Autism Center. “Take opportunities to learn more about autism and other developmental disabilities. Reserve judgment of parents and caregivers who are trying to raise their child on the spectrum in the best way they know how. And remember that individuals with autism have the capacity to feel joy and sadness, and share the need for emotional bonds and connection to others.”
May Institute also polled respondents about what they believe most people “don’t get” about autism. Here are facts that families of children with autism want you to know about the disorder:
People can make a difference when they know how. In the words of one parent, “We need our community to support us. Help us not to feel isolated. Everyone can help in their own way, and everybody’s contribution is appreciated.”